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Unloosen expectations. Get ready to let go, especially at dinner time. Be aware of sundowner syndrome, the inevitability of cantankerousness, contrariness, irritability. Expect things to never be the same, even if you plan for them to be, since it is important to keep to a schedule for each meal, when you view the film every night. Remember it’s o.k. if things don’t go right. Recognize all the good, especially at bad times. You, as a caregiver, feel deeply, your partner has big feelings. Know who we are, that the depth of bad feeling is in proportion to how good we are, that there is a flip side in feeling the pain, in knowing, because it feels worse than it is. Always allow yourself some time. Remind yourself there is no problem-solving at night, or at any time while its dark out— and wait, the waiting is hard. Take a step back: recenter. It’s hard to achieve: being in the moment. In times of distress be gracious: See each other. Take a breath. Open your heart. Practice kindness.
Copyright 2023 Wally Swist
Wally Swist’s books include Huang Po and the Dimensions of Love (Southern Illinois University Press, 2012), selected by Yusef Komunyakaa for the 2011 Crab Orchard Open Poetry Competition, and A Bird Who Seems to Know Me: Poems Regarding Birds and Nature, winner of the 2018 Ex Ophidia Poetry Prize. He lives in South Hadley, Massachusetts.
4/19Hi Wally–Thanks so much for sharing this poemSo very powerful & spot on. You have not only helped (& continue to help) Tevis, but also have given whoever reads this, a way to proceed caring for others.Not an easy road, but it easier to go down it with your guidance. We all need a map.Susan
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Thanks, Susan!
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Thanks for this poem. Mr. Swist is obliviously experienced and caring. As he expresses, being a caregiver is complicated. It can be rewarding or devastating, or both, almost simultaneously. A planned day can go astray with one misspoken word or an unplanned occurrence can be joyous, well, maybe not joyous; how about rewarding. I have only addressed my caregiving once in a poem. I guess, I have unconsciously avoided the subject.
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Caregivers are the unrecognized heroes of our society. I will always be grateful to my brother who cared for our parents the last five years of their lives.
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Oh. I’ve been there. Late mother, late husband. Yes. Recenter. Remember
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Bless you, Barbara.
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